Literature and Medicine II

Works Cited

Allister, Mark. Refiguring the Map of Sorrow: Nature Writing and Autobiography. Charlottesville: UP of Virginia, 2001.

Barry, Sharon. 25 June 2009 <http://www.skeleigh.com>.

Barthes, Roland. “Introduction to the Structural Analysis of Narratives.” Image-Music-Text. Essays selected and translated by Stephen Heath. London: Fontana Press, 1977. 79-124.

Becker, Gay. Disrupted Lives: How People Create Meaning in a Chaotic World. Berkeley: U of California P, 1997

Couser, G. Thomas. Recovering Bodies: Illness, Disability, and Life Writing. Madison: U of Wisconsin P, 1997.

Culley, Margo. “Introduction to A Day at a Time: Diary Literature of American Women from 1764 to the Present.” Women, Autobiography, Theory: A Reader. Ed. Sidonie Smith and Julia Watson. Madison: U of Wisconsin P, 1998, 217-21.

Eakin, Paul John. How Our Lives Become Stories: Making Selves. Ithaca, N.Y.: Cornell UP, 1999.

Friedman, Susan Stanford. “Women’s Autobiographical Selves: Theory and Practice.” The Private Self: Theory and Practice of Women’s Autobiographical Writings. Ed. Shari Benstock. Chapel Hill: U of North Carolina P, 1988. 34-62.

Gee, James Paul. “The Narrativization of Experience in the Oral Style.” Journal of Education 167.1 (1985): 9-35.

Good, Byron J. Medicine, Rationality, and Experience. Cambridge: Cambridge UP, 1994.

Husserl, Edmund. The Crisis of the European Sciences and Transcendental Phenomenology. 1936. Trans. David Carr. Evanston: Northwestern UP, 1970.

Kennedy, Helen. “Technobiography: Researching Lives, Online and Off.” Biography 26.1 (2003): 120-39.

Killoran, John B. “The Gnome in the Front Yard and Other public Figurations: Genres of Self-Presentations on Personal Home Pages.” Biography 26.1 (2003): 66-83.

Klugman, Craig. “Narrative Phenomenology: Exploring Stories of Griefand Dying.” Meaning in Suffering: Caring Practices in the Health Professions. Ed. Nancy E. Johnston and Alwilda Scholler-Jaquish. Madison: U of Wisconsin P, 2007. 144-85.

Lund, Doris. Eric. 1974. New York: Perennial, 2000.

McNeill, Laurie. “Teaching an Old Genre New Tricks: The Diary on the Internet.” Biography 26.1 ( 2003): 24-45.

Papacharissi, Zizi. “The Virtual Geographies of Social Networks: A Comparative Analysis of Facebook, LinkedIn and ASmallWorld.” New Media & Society 11.1-2 (2009): 199-220.

Ricoeur, Paul. Hermeneutics and the Human Sciences: Essays on Language, Action and Interpretation. Trans. John B. Thompson. Cambridge: Cambridge UP, 1981.

Rubinstein, Robert. “Narratives of Elder Parental Death: A Structural and Cultural Analysis.” Medical Anthropology Quarterly 9.2 (1995): 257-76.

Scarry, Elaine. The Body in Pain: The Making and Unmaking of the World. New York: Oxford UP, 1985.

Schutz, Alfred. “On Multiple Realities.” Collected Papers: Vol. I. The Problem of Social Reality. The Hague: Martinus Nijhoff, 1971. 207-59

Smith, Sidonie, and Julia Watson. Reading Autobiography: A Guide for Interpreting Life Narratives. Minneapolis: U of Minnesota P, 2001.

Sorapure, Madeleine. “Screening Moments, Scrolling Lives: Diary Writing on the Web.” Biography 26.1 (2003): 1-23.

Westlake, E. J. “Friend Me if You Facebook: Generation Y and Performative Surveillance.” TDR: The Drama Review: A Journal of Performance Studies 52.4 (2008): 21-40.

Zalis, Elayne. “At Home in Cyberspace: Staging Autobiographical Scenes.” Biography 26.1 (2003): 84-119.

Notes

• 1) The idea that Eric helped others to survive is further developed in the additional afterword, which Lund added to her narrative in 1989. After describing the increasingly successful treatment of leukemia in the 1970s and 80s, Lund refers to a conversation with one of Eric’s oncologists, Dr. Victor Grann, to link Eric to that success story: “‘Eric, and the young patients of his generation, made a tremendous contribution,’ Victor assured me. ‘We were able to tap them for all sorts of information, study our successes or failures, and make careful judgments about what to try next time’” (340).
• 2) At the bottom of the section “The Beginning,” Barry explains why she decided to start a blog focusing on her son’s condition: “On May 9th, I started this website as a way to keep friends and family notified of Keeghan’s progress. Little did I know it would turn into such an epic novel!”
• 3) Barry’s webpage is subdivided into eleven sections, which can be accessed via the site’s navigation menu. The first section entitled “The Journey” consists of entries ranging from May 9, 2006 to January 22, 2009 and documents Keeghan’s treatment, his death, and the time immediately following his death; one of the earlier entries (May 22, 2006) is written by Keeghan himself. While the section “The Journey” consists of almost daily updated short entries in reverse-chronological order, the second section entitled “The Beginning” offers a coherent narrative, which retrospectively describes the onset of Keeghan’s disease and which covers the time period between March 10, 2006 and May 9, 2006; this part of Barry’s webpage was added almost a year after Keeghan’s initial diagnosis and thus several months after her first blog entry. The section “Moving Forward” consists of single entries in reverse chronological order again. No longer updated on a daily basis, this section covers the time period between January 22, 2009 and the present and describes the Barry family’s life after Keeghan’s death. These three text sections are accompanied by a video page, a guestbook, a contact form, and five picture pages (four regular picture pages paralleling Barry’s written entries, and one page dedicated to a family trip to Ireland).
• 4) All passages quoted above are all part of longer entries, and there are several updates in between those entries as well.
• 5) For a discussion of social networking platforms, see, for example, Westlake and Papacharissi; for new forms of self-representation, new technological possibilities, and a discussion of privacy in online, see McNeill, Zalis, Killoran, Kennedy, and Sorapure.